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Tye's Story: Adjusting to a new way of life

As part of Disability Pride Month, hear from Tye Cox as he shares his experience coming to terms with a physical disability and launches the new Limitless Community Group.

I joined Telent in 2021 in the Integration team for CCTV environments in Highways before moving into my current role as SMS Infrastructure Support Engineer.

Before coming to Telent, I’d been in the army for eight years with the Royal Signals. Over that time I worked on everything from telecoms and high frequency radios to IT engineering and infrastructure. Being in the army enabled me to travel to places all over the world, such as Germany, France and Kenya and, as you can expect, physically I was fit and had a lot of muscle. On reflection, this is partly the reason I’m lucky to be alive today.

Lucky to be alive

On 16 June 2022 I was involved in a serious motorcycle accident that resulted in eight broken ribs, a broken collarbone and a very serious spinal cord injury that left me paralysed from the chest down. After the accident I was in a coma for three weeks and doctors said I might not be able to walk again. At this time, I also found out my partner was pregnant so there were a lot of conflicting emotions and thoughts!

Mainly I just kept thinking about how grateful I was to be alive. A lot of thoughts came into my head about the emotional attachments I had and how I wished I’d spent more time with the people who matter most to me. It made me think about what really mattered rather than materialistic things – I just wanted to be with my partner and be there for my newborn.

I had to go for physiotherapy sessions to learn how to move my body again and support myself in using a wheelchair. I was so grateful to the doctors and nurses who helped and supported me that it inspired me to be there for other people and do everything I could to help others.

Adjusting to a new way of life

Living with a disability obviously comes with its challenges but I found that many of these were mental as I came to terms with what had happened. In my head, I was worried about how I was going to raise my newborn son and how I was going to support my family.

Physically, there were changes I had to adapt to. Simple things like walking down the street and holding my partner’s hand were different. Now that my son is a bit older, I’m having to train to get out of my wheelchair and onto the floor so I can play with him, which I would never have thought twice about before.

There were also other complications. After my injury, the doctors found a cyst in my spinal cord which has caused tetraplegia (partial or total loss of function in the arms, legs, middle or pelvis). It’s affected my left arm and left me with a lack of sensation and dexterity.

I’m slowly building up as much strength as I can to compensate for the lack of mobility. It’s tough as it makes it difficult moving my wheelchair and getting in and out of it. It takes up a lot of mental space as I have to consider mobility when I go out and about or stay somewhere new. For example, a hotel will say it’s accessible on their website but when you get there, you’ll find a small step to the door and then you need to have someone strong enough to help you.

I recently went to Santorini for my cousin’s wedding and, despite there being a few challenges with the accessibility and a lot of hills, it’s encouraged me with other trips. If I can make it work there, I can make it work anywhere! Which led to me travelling by myself to meet my brother in Jamaica for a week.

Support takes some of the pressure off

Telent have been really amazing throughout all of this in helping me get back to work. My role has shifted from on-site working to a more behind-the-scenes support role which means I can work from home and only go into the office if I have the ability and means to get there.

My team is massively supportive and are always checking in and asking questions. If I need time off for things like physio appointments my manager is really accommodating. It takes the pressure off when you have a team who look out for you. Especially when some everyday tasks take four times as long (or so they say) in comparison to an able-bodied person, such as going to the kitchen to make a cup of tea or even getting dressed!

Working from home also supports me in maintaining my energy levels as I get tired more easily. A lack of core stability means I have to use my head to counterbalance which can be exhausting and cause a lot of pressure to my body. I’m also at risk of getting pressure sores so I constantly need to move and fidget to help prevent that.

Try not to make assumptions

If I could give any piece of advice to others, whether you have a physical or invisible disability, I’d say make sure you have someone you can talk to and, above all, be able to advocate for yourself! A lot of people try to move my wheelchair without asking and it’s important to advocate your boundaries and tell others what you need.

For allies, my main advice is try not to be too pushy and make assumptions without checking with the person first. It’s great that people want to help but it’s much better to ask someone if there’s a way you can help them. As an example, when I’m going uphill in my wheelchair people try to push my chair to ‘help’ me without checking with me first. I know I’ll be doing it on my own at some point, so I want to test my own limits.

The second thing is not to be afraid to ask questions – just avoid patronising ones! I’m an open book, and more than happy to answer questions to help people understand a bit more. But it’s frustrating when people ask things like, “Is there movement in your legs?” or when I explain I have physio for upper body strength and they say things like, “I’m sure you’ll walk again”. I’m trying to come to terms with living as I am, and I know that it will mean a miracle for me to walk again. Being more mindful with questions and asking how you can help goes a long way.

On a lighter note, I do notice people looking when I’m out shopping and kids especially do tend to stare – and that’s okay. I usually pop a wheelie and try to make them laugh! It’s a reminder that it’s okay to be curious and ask questions. I always try to make light of a situation and I thank the army for that, as we would always banter and have a laugh to make each other feel better.

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